Podcast

CURE SYNGAP1 PODCAST aka SYNGAP10

Over 1,600 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This weekly podcast is for them. -A quick summary of the latest news in the…

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Latest episodes

  1. Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e21410 Aug 2026
  2. CAMP4 Trial Approved in Australia & Argentina, Connect for news, Ada & Ford Fund a grant, #S10e2137 Aug 2026
  3. #Future4Ford. 2Q26 #SYNGAP1Census = 1,806 Patients (+45) $CAMP #ValproateDemandBetter #S10e2125 Jul 2026
  4. We need a #SYNGAP1 mouse lab? #BIO2026 #MDBR 19 days for Merch. #GeneticTesting #ASOwebinar #S10e21126 Jun 2026
  5. #ILoveSomeoneWithSYNGAP1. June 21 is SYNGAP1 Awareness day. $159 rooms at the GrandHyatt! #S10e21020 Jun 2026
  6. #NightOfImpact a huge success & we are lucky to have Dr. Helen R Willsey. #S10e20911 Jun 2026
  7. Tony update. #ThisIsOursToLose. More great results from $CAMP4. #NightOfImpact in 9 days! #S10e20819 May 2026
  8. Earnings reports: CAMP4 files. Stoke optimizing. Praxis on track. 2026 Video! #S10e2078 May 2026
  9. Longitudinal Data Matters! Prioritized list of studies! #Sprint4SynGAP a great success! #S10e2066 May 2026
  10. Comment on Haystack Petition to FDA. New Board of Trustees. #ICD10 F78.A1 #CureID #S10e20521 Apr 2026